Information Revolution: Transforming Health Care Through Big Data

On June 25, the Bipartisan Policy Center's Health Innovation Initiative, in partnership with Intel, hosted a policy forum on big data. The forum discussed the promise, challenges, and policies critical to encouraging innovation and economic growth while safeguarding privacy and security in our increasingly connected society. A keynote remarks was delivered by Senator Ron Wyden (D-OR).




Tuesday, June 25, 2013

8:30 a.m. Welcome and Opening Remarks by Jason Gurment, President, Bipartisan Policy Center
8:35 a.m. The Importance of Transforming Health Care: A keynote from The Honorable Senator Ron Wyden (D-OR)
8:50 a.m. Transforming Health Care Through Big Data: A Discussion
  • Senator Wyden;
  • Eric Dishman, Intel Fellow and General Manager of the Health & Life Sciences Group, Intel Corporation
Moderated by Janet Marchibroda, Director, Health Innovation Initiative, Bipartisan Policy Center
9:30 a.m. Examples of How Big Data Has Driven Improvements in Health and Health Care: The Opportunities and the Challenges - Insights From Panelists:
  • Nirav Shah, MD, MPH, MPH, Commissioner of Health, State of New York;
  • Len Lichtenfeld, MD, Chief Medical Officer, American Cancer Society; and
  • Joe Gray, Ph.D., Associate Director for Translational Research, Knight Cancer Institute and Chair, Department of Biomedical Engineering, Oregon Health and Science University
Interactive Dialogue with Participants Moderated by Janet M. Marchibroda
10:30 a.m. Break
10:45 a.m. Operationalizing the Use of Big Data - Insights From Panelists:
  • Tony Trenkle, Chief Information Officer, Centers for Medicare and Medicaid Services;
  • Mark Hogle, Chief Technology Officer, Centers for Medicare and Medicaid Services; and
  • J. Marc Overhage, MD, PhD, Chief Medical Information Officer, Siemens Healthcare
Interactive Dialogue with Participants Moderated by Janet M. Marchibroda
12:00pm Break for Lunch
12:30pm Addressing Privacy and Security - Insights From Panelists:
  • Deven McGraw, Director, Health Privacy Project, Center for Democracy and Technology;
  • Khaled El-Emam, Canada Research Chair in Electronic Health Information, University of Ottawa; Chief Executive Officer, Privacy Analytics; and
  • Mary Grealy, President, Healthcare Leadership Council
Interactive Dialogue with Participants Moderated by Janet M. Marchibroda
1:45pm Meeting Summary and Adjourn by Janet M. Marchibroda


Jason Grumet

Jason Grumet

President, Bipartisan Policy Center

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Jason Grumet is founder and president of the Bipartisan Policy Center (BPC). Throughout his career, Grumet has worked at the intersection of policy and politics. In 2007, with the leadership of former U.S. Senate Majority Leaders Howard Baker, Tom Daschle, Bob Dole and George Mitchell, he founded BPC to develop and promote bipartisan solutions to the country’s most difficult public policy challenges. From 2001 to 2011 Grumet directed the National Commission on Energy Policy (NCEP) which is now a former BPC project. Prior to leading the Energy Commission, Grumet was the Executive Director of NESCAUM (Northeast States for Coordinated Air Use Management), a nonprofit association of air quality agencies in the Northeast.

Grumet is a frequent witness at Congressional hearings and regularly appears in print and electronic media. Grumet received a Bachelor of Arts degree from Brown University and his Juris Doctorate from Harvard University. He lives with his wife, Stephanie, and their three children in Washington, D.C.

Senator Wyden

Senator Wyden (D-OR)

United States Senate

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Whether he’s taking on powerful interests, listening to constituents at one of his famous town hall meetings or standing up for Oregonians on the floor of the U.S. Senate, Ron Wyden is an effective leader on the issues that matter most. As the Wall Street Journal’s Kimberly Strassel recently put it: "He's best described as a wonk, a workhorse, a doer.”

Wyden believes the nation’s biggest challenges can only be solved by what he calls “principled bipartisanship,” solutions that allow all parties to stay true to their respective principles and celebrate agreements. Following that approach has helped him author more than 150 bipartisan bills and assemble unprecedented bipartisan coalitions on issues such as health care, infrastructure and tax reform.

When principles are at stake, however, Wyden has never shied from standing alone, even when it means taking on powerful interest groups or his own party. His lone stand against the PROTECT IP Act (PIPA) and its predecessor, the Combating Online Infringement and Counterfeit Act (COICA), put a spotlight on the problematic legislation being fast tracked through Congress and served as a rallying point for the historic Internet protests that ultimately toppled the bills. He stood alone on the floor of the Senate to block right wing efforts to overturn Oregon’s Death with Dignity law; a law that Oregon voters have passed twice. His relentless defiance of the national security community’s abuse of secrecy forced the declassification of the CIA Inspector General’s 9/11 report, shut down the controversial Total Information Awareness program and put a spotlight on both the Bush and Obama Administration’s reliance on “secret law.” To protect hard-working folks in the intelligence community and ensure informed public debate on national security issues, Wyden successfully fought to have controversial anti-leaks provisions removed from the latest intelligence authorization bill.

Wyden has taken the lead on policies that are helping to grow the economy in areas like improved infrastructure through his Build America Bonds program, micro and nano-technology, e-commerce, and through incentives for cleaner sources of energy.

He has won countless awards for his pioneering role in establishing a free and open Internet, is known for his commitment to an open government, having authored the “Stand By Your Ad” law and the resolution ending Senate Secret Holds, and he has been routinely recognized as one of the Senate’s foremost health policy thinkers.

In Oregon, Wyden has authored laws extending permanent Wilderness protections to more than 400,000 acres including Mt. Hood, the Columbia River Gorge, Oregon’s Bull Run Watershed, Badlands, Spring Basin, Copper Salmon and Soda Mountain. Since 2000, the Wyden-authored Secure Rural Schools and Community Self Determination Act, commonly known as the “county payments” law, has helped provide a stable source of revenue for historically timber-dependent communities and Wyden’s Combat Illegal Logging Act has helped protect Oregon’s hardwood industries from the import of illegally harvested timber products.

Wyden serves on the Committees on Finance, Budget, Aging, Intelligence, and Energy and Natural Resources. He is chairman of the Senate Energy and Natural Resources Committee and chairs the Senate Finance Subcommittee on International Trade, Customs and Global Competitiveness.

Wyden began college at the University of California-Santa Barbara where he won a basketball scholarship and played in Division I competition for two seasons before transferring to Stanford University where he completed his Bachelors degree with distinction. He earned his law degree from the University of Oregon School of Law in 1974, after which he taught gerontology and co-founded the Oregon chapter of the Grey Panthers, an advocacy group for the elderly. He also served as the director of Oregon Legal Services for the Elderly from 1977 to 1979 and was a member of the Oregon State Board of Examiners of Nursing Home Administrators during that same period. He served in the U.S. House of Representatives from 1981 until his election to the U.S. Senate.

Eric Dishman

Eric Dishman

Intel Fellow and General Manager of the Health & Life Sciences Group, Intel Corporation

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Eric Dishman is an Intel Fellow and general manager of Intel's Health & Life Sciences Group.

He founded the product research and innovation team responsible for driving Intel’s worldwide healthcare research, new product innovation, strategic planning, and health policy and standards activities.

Dishman is recognized globally for driving healthcare reform through home and community-based technologies and services, with a focus on enabling independent living for seniors.

His work has been featured in The New York Times, Washington Post and Businessweek, and The Wall Street Journal named him one of “12 People Who Are Changing Your Retirement.”

He has delivered keynotes on independent living for events such as the annual Consumer Electronics Show, the IAHSA International Conference and the National Governors Association.

He has published numerous articles on independent living technologies and co-authored government reports on health information technologies and health reform.

He has co-founded organizations devoted to advancing independent living, including the Technology Research for Independent Living Centre, the Center for Aging Services Technologies, the Everyday Technologies for Alzheimer’s Care program, and the Oregon Center for Aging & Technology.

Khaled El-Emam, PhD

Dr. Khaled El Emam

Chief Executive Officer, Privacy Analytics

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Dr. Khaled El Emam is the founder and CEO of Privacy Analytics. He also holds the Canada Research Chair in Electronic Health Information at the University of Ottawa and is an Associate Professor in the Faculty of Medicine at the university.

In 2003 and 2004, Dr. El Emam was ranked as the top systems and software engineering scholar worldwide by The Journal of Systems and Software based on his research on measurement and quality evaluation and improvement.

Dr. El Emam is senior scientist at the Children’s Hospital of Eastern Ontario Research Institute and leads the multi-disciplinary Electronic Health Information Laboratory (EHIL)team.

Joe Gray, PhD

Joe Gray, PhD

Associate Director for Translational Research, Knight Cancer Institute and Chair, Department of Biomedical Engineering, Oregon Health and Science University

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Internationally renowned cancer and genomic researcher Joe Gray, Ph.D., who joined Oregon Health & Science University in January from the Lawrence Berkeley National Laboratory, recently shared his vision for cancer research in a lecture at OHSU.

Gray is known for, among other things, helping to develop the FISH test that transformed how treatments are selected for breast cancer patients. He co-leads the Stand Up To Cancer initiative’s “Breast Cancer Dream Team,” serves as a key player in the Cancer Genome Atlas Project and is spearheading the use of computer models to predict how promising targeted therapies will work in attacking cancer cells.

Gray heads OHSU’s newly created Center for Spatial Systems Biomedicine, which will use a combination of physics, biomedical engineering, chemistry and biology to study how cancer cells grow.

The center will have a research lab at the Oregon University System-OHSU Collaborative Life Sciences Building planned for OHSU’s Schnitzer Campus on the South Waterfront.

He also serves as the OHSU Knight Cancer Institute’s associate director for translational research and the Gordon Moore Professor and chair of the Department of Biomedical Engineering.

His expertise lies in molecular analysis technology, identification of genomic aberrations that contribute to cancer pathophysiology, and development of efficient strategies for enhanced marker-guided cancer therapy—especially for breast and ovarian cancer.

Mary Grealy

Mary Grealy

Chief Executive Officer, Healthcare Leadership Council

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Mary Grealy is president of the Healthcare Leadership Council, a coalition of chief executives of the nation’s leading health care companies and organizations. The HLC advocates consumer-centered health care reform, emphasizing the value of private sector innovation. It is the only health policy advocacy group that represents all sectors of the health care industry. She was appointed to the position in August 1999.

Ms. Grealy has an extensive background in health care policy.

She has led important initiatives on the uninsured, Medicare reform, improving patient safety and quality, protecting the privacy of patient medical information and reforming the medical liability laws. She testifies frequently before Congress and federal regulatory agencies.

From 1995 until she began her tenure at HLC, she served as Chief Washington Counsel for the American Hospital Association, a national organization representing all types of hospitals, health systems and health care networks. In her position, she was responsible for the organization’s legal advocacy before Congress, as well as executive and judicial branches of government.

From 1979 to 1995, Ms. Grealy was Chief Operating Officer and Executive Counsel for the Federation of American Hospitals, a trade association representing 1,700 investor-owned and managed hospitals and health systems. She coordinated legislative and regulatory policies as well as lobbying activities for the Federation.

Ms. Grealy has a bachelor degree from Michigan State University and a law degree from Duquesne University. She is a member of the American Health Lawyers Association and the Board of Directors of Duquesne University. She also serves on the advisory boards of Duke Health Sector Advisory Council, Women Business Leaders in Health and the March of Dimes Public Policy Council. She is a frequent public speaker on health issues and has been ranked many times by Modern Healthcare as one of the 100 Most Powerful People in Healthcare and has been named to Modern Healthcare’s list of the Top 25 Women in Healthcare for 2009.

Mark Hogle

Mark Hogle

CMS Chief Technology Officer, Centers for Medicare and Medicaid Services (CMS)

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Mark Hogle is the Chief Technology Officer (CTO) for the Centers for Medicare and Medicaid Services (CMS). As CTO, Mark serves as the agency's principal expert and advisor on advanced technical matters relating to the development, evaluation and utilization of information technologies.

Mark is an Information Technology (IT) professional with more than 24 years of technical experience and 17 years of experience in IT research, design, engineering and project management. He has been with CMS since February 2003 and has been instrumental in setting the strategic IT standards for the agency, and implementing a variety of enterprise-wide IT systems and services.

Mark played an integral role in developing the "CMS 3-Zone Architecture" that is now a part of the CMS Technical Reference Architecture, and led the implementation of enterprise services in the areas of file transfer, content management, identity management, and security monitoring and management. Prior to becoming the CTO, Mark served as a Senior Technical Advisor in the CMS Office of Information Services (OIS), Information Services Design and Development Group. In that role, Mark provided exemplary IT leadership, guidance and governance over the development of several new systems. In addition, Mark served as the systems integrator for a number of major programs, the most recent being the Electronic Health Record Incentive Payment Program in support of the HITECH (Health Information Technology for Clinical and Economic Health) Act.

Mark is a native of Jackson, Michigan. He earned a Bachelor of Science degree in Electrical Engineering from the University of Notre Dame. He currently resides in Ellicott City, Maryland.

Leonard Lichtenfeld, MD

J. Leonard Lichtenfeld, MD, MACP

Deputy Chief Medical Officer, American Cancer Society

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Dr. Lichtenfeld is Deputy Chief Medical Officer for the American Cancer Society. Among his responsibilities is directing the Society's Cancer Control Science Department. This group of internationally recognized experts focuses on the prevention and early detection of cancer, as well as emerging science and trends in cancer. The department is responsible for producing the Society's widely recognized guidelines for the prevention and early detection of cancer, including the role of nutrition and physical activity. In addition, Dr. Lichtenfeld oversees the Society's cancer control programs in health equities, global health and our preventive health partnership with the American Heart Association and the American Diabetes Association.

Dr. Lichtenfeld is a board certified medical oncologist and internist who was a practicing physician for nearly 20 years. He has been active for many years in medical affairs on a local, state and national level. He has a long-standing interest in legislative and regulatory issues related to medicine, and serves on several national committees focused on physician payment, the quality of medical care and the role of health information technology in healthcare delivery.

A graduate of the University of Pennsylvania and Hahnemann Medical College (now Drexel University College of Medicine) in Philadelphia, Dr. Lichtenfeld completed his postgraduate training at Temple University Hospital in Philadelphia, Johns Hopkins University School of Medicine in Baltimore, and the National Cancer Institute in Bethesda, Md. He is a member of Alpha Omega Alpha, the national medical honor society, and has received several awards from medical organizations in recognition of his contributions to the practice of medicine. Dr. Lichtenfeld is married and resides in Atlanta and Thomasville, Ga.

Janet Marchibroda

Janet Marchibroda

Director, Health Innovation Initiative, Bipartisan Policy Center

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Janet Marchibroda serves as the director of the Health Innovation Initiative at the Bipartisan Policy Center (BPC), following two years serving as the chair of BPC’s Health Information Technology (IT) Initiative. The BPC initiative conducts research and collaborates with experts and stakeholders across every sector of health care to develop recommendations that promote innovation and the use of IT to support improvements in the cost, quality, and patient experience of care.

Marchibroda also serves as board member and the initial executive director for Doctors Helping Doctors Transform Health Care, a non-profit, collaborative, social media effort—led primarily by doctors for doctors—to support the transformation of health care, initially through health IT, given the foundational role it plays in improving the quality, safety and efficiency of care.

Marchibroda previously led stakeholder engagement activities for the National Coordinator for Health Information Technology at the Department of Health and Human Services. She also served as the chief health care officer for IBM.

Marchibroda also served as the founding chief executive officer for eHealth Initiative (eHI), an independent, non-profit multi-stakeholder organization whose mission is to improve the quality, safety and efficiency of health care through information and IT. While at eHI, she developed consensus among leaders across every sector of health care on principles, policies and strategies for leveraging IT to drive improvements in health and health care and successfully advocated for significant federal leadership and financial support for the use of health IT to drive positive health system change, which culminated with passage of HITECH, which was signed into law in February 2009.

While at eHI, Marchibroda served as the initial executive director of Connecting for Health, a public-private sector initiative designed to catalyze national actions to drive electronic connectivity and an interconnected, electronic health information infrastructure; under a grant from the Markle Foundation with additional support from the Robert Wood Johnson Foundation.

Marchibroda also served as the chief operating officer of the National Committee for Quality Assurance, a non-profit, independent organization devoted to evaluating and improving the quality of health care for Americans.

Her experience also includes co-founding and serving as chief operating officer for a for-profit organization focused on providing electronic information and publishing services for health plans, which was later acquired by the international media company Bertelsmann AG, and serving as the interim chief operating officer for the National Coalition for Cancer Survivorship.

Marchibroda is a nationally recognized expert on and advocate for the use of health IT to improve the quality, safety and efficiency of health care. She has worked extensively with leaders across two administrations, leaders in both parties of Congress, leaders in a majority of states across the U.S., and private sector leaders across every sector of health care. She has been recognized as one of the Top 25 Women in Healthcare by Modern Healthcare magazine and received the Federal Computer Week Top 100 Award. She holds a B.S. in commerce from the University of Virginia and an M.B.A with a concentration in organization development from The George Washington University.

Deven McGraw

Deven McGraw

Director, Health Privacy Project, Center for Democracy & Technology

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Deven McGraw is the Director of the Health Privacy Project at CDT. The Project is focused on developing and promoting workable privacy and security protections for electronic personal health information.

Ms. McGraw is active in efforts to advance the adoption and implementation of health information technology and electronic health information exchange to improve health care. She was one of three persons appointed by Kathleen Sebelius, the Secretary of the U.S. Department of Health & Human Services (HHS), to serve on the Health Information Technology (HIT) Policy Committee, a federal advisory committee established in the American Recovery and Reinvestment Act of 2009. She also served on two key workgroups of the American Health Information Community (AHIC), the federal advisory body established by HHS in the Bush Administration to develop recommendations on how to facilitate use of health information technology to improve health. Specifically, she co-chaired the Confidentiality, Privacy and Security Workgroup and was a member of the Personalized Health Care Workgroup. She also served on the Policy Steering Committee of the eHealth Initiative and now serves on its Leadership Committee. She is also on the Steering Group of the Markle Foundation's Connecting for Health multi-stakeholder initiative.

Ms. McGraw has a strong background in health care policy. Prior to joining CDT, Ms. McGraw was the Chief Operating Officer of the National Partnership for Women & Families, providing strategic direction and oversight for all of the organization's core program areas, including the promotion of initiatives to improve health care quality. Ms. McGraw also was an associate in the public policy group at Patton Boggs, LLP and in the health care group at Ropes & Gray. She also served as Deputy Legal Counsel to the Governor of Massachusetts and taught in the Federal Legislation Clinic at the Georgetown University Law Center.

Ms. McGraw graduated magna cum laude from the University of Maryland. She earned her J.D., magna cum laude, and her L.L.M. from Georgetown University Law Center and was Executive Editor of the Georgetown Law Journal. She also has a Master of Public Health from Johns Hopkins School of Hygiene and Public Health.

J. Marc Overhage, MD, PhD

J. Marc Overhage, MD, PhD

Chief Medical Informatics Officer, Siemens Healthcare

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J. Marc Overhage, MD, PhD is the Chief Medical Informatics Officer for Siemens Healthcare. Prior to joining Siemens Dr. Overhage was the founding Chief Executive Officer of the Indiana Health Information Exchange and was Director of Medical Informatics at the Regenstrief Institute, Inc., and a Sam Regenstrief Professor of Medical Informatics at the Indiana University School of Medicine. Dr. Overhage has also been a Principal Investigator over the past two years on the Observational Medical Outcomes Partnership research program.

Dr. Overhage has spent over 25 years developing and implementing scientific and clinical systems and evaluating their value. With his colleagues from the Regenstrief Institute, he created a community wide electronic medical record (called the Indiana Network for Patient Care) containing data from many sources including laboratories, pharmacies and hospitals in central Indiana. The system currently connects a majority of acute care hospitals in central Indiana and includes inpatient and outpatient encounter data, laboratory results, immunization data and other selected data. In addition Dr. Overhage has developed and evaluated clinical decision support including inpatient and outpatient computerized physician order entry and the underlying knowledge bases to support them.

Dr. Overhage is a member of the Institute of Medicine, a fellow of the American College of Medical Informatics and the American College of Physicians. He received the HIMSS Davies Recognition Award for Excellence in Computer-Based Patient Recognition for the Regenstrief Medical Record System. He serves on the National Committee for Vital and Health Statistics and the Health Information Technology Standards Committee as well as serving on the Board of Directors of the National Quality Form and being engaged in a number of national healthcare initiatives.

Nirav Shah, MD

Nirav R. Shah, M.D., M.P.H.

Commissioner of Health, State of New York

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Nirav R. Shah, M.D., M.P.H., is the 15th New York State Commissioner of Health. He heads one of the nation's leading public health agencies with a budget of more than $50 billion, and administers the state's public health insurance programs, which cover 5 million New Yorkers. The Department also regulates hospitals and other health care facilities, conducts research in a premier biomedical laboratory, and supports public health and prevention initiatives.

A native of Buffalo, Dr. Shah is board-certified in Internal Medicine and is an honors graduate of Harvard College and Yale School of Medicine. He was a Robert Wood Johnson Clinical Scholar at UCLA and a National Research Service Award Fellow at New York University. Before becoming Commissioner, he was Attending Physician at Bellevue Hospital Center in Manhattan, Associate Investigator at the Geisinger Center for Health Research in central Pennsylvania, and Assistant Professor of Medicine in the Section of Value and Comparative Effectiveness at NYU Langone Medical Center.

Dr. Shah has been a leading researcher in the use of large-scale clinical laboratories and electronic health records to improve the effectiveness and efficiency of care. He is a nationally recognized thought leader in patient safety and quality, comparative effectiveness, and the methods needed to transition to lower-cost, patient-centered health care for the 21st century.

His vision for New York is a state where every resident has access to affordable health insurance coverage, high quality care, and early screening and other services to prevent chronic disease and improve overall health.

Tony Trenkle

Tony Trenkle

Director and Chief Information Officer, Centers for Medicare and Medicaid Services

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Tony Trenkle is the Chief Information Officer (CIO) and the Director of the Office of Information Services (OIS) in the Centers for Medicare and Medicaid Services (CMS), Department of Health and Human Services (HHS). In this position he provides oversight and leadership to CMS over $1 billion dollar annual expenditures on Information Technology (IT) products and services. He chairs the CMS IT Investment Review Board and works closely with the HHS Chief Technology Officer (CTO) and CIO on overarching IT strategies. As the head of OIS, he directs a complex national operational infrastructure that supports CMS claims processing and other business services.

Prior to his current position, Tony was the Director of the Office of E-Health Standards and Services (OESS) from March 2005 to December 2010. In that position, he was the CMS lead executive for directing the Health Information Technology for Economic and Clinical Health (HITECH) Act provisions of the American Recovery and Reinvestment Act, including the regulations covering the meaningful use criteria for the Medicare and Medicaid Electronic Health Records (EHR) incentives programs and the program management for CMS operational implementation. In that capacity he worked closely with the leadership of the Office of the National Coordinator to coordinate national Health Information Technology (HIT) strategies. Tony is also a member of the HIT Policy Committee.

OESS was also responsible for the overall coordination of CMS e-Health initiatives as well as regulations, enforcement and outreach for the Health Insurance Portability and Accountability Act (HIPAA) Administrative Simplification standards (with the exception of privacy and security) and the administrative simplification provisions of the Affordable Care Act. He was also responsible for the Medicare Modernization Act e-prescribing program.

Tony also led development and publication of the HIPAA 5010 and International Classification of Diseases (ICD-10) standards regulations, and is currently leading the ICD-10 implementation for both CMS and industry wide. In addition, Tony was CMS Senior Privacy Official and chaired the agency's Data Governance Board, which provides executive leadership over CMS data use policies and processes.

Before joining CMS in 2005, Tony held a number of leadership roles for several Federal agencies. These included the Social Security Administration (SSA) where he oversaw the development and implementation of SSA's Internet on-line services for the public, including the first on-line retirement application. Prior to SSA, he was the General Services Administration's Director of the Office of Electronic Commerce and the Co-Director of the Federal Electronic Commerce Program Office, where he led the Federal implementation of standards and systems to support the first government-wide electronic commerce initiatives including on-line procurement systems.

Tony has received a number of awards recognizing his accomplishments including the Healthcare Information and Management Systems Society (HIMSS) 2010 Federal Leadership Award and the Senior Executive Service Presidential Rank Award.